Posted by: seserdr1975 | September 16, 2013

Let’s Start at the Very Beginning….

Good Morning everyone! So here is how I want to do this. I’m going to give a bit about me, give what I’m doing in the process of working on me and finally some tidbits of useful information.

The best place to start is the beginning. It was February 8, 1975. My Mom Barb was in her third trimester of what she has said was an uneventful pregnancy.  So here is how the story went as I heard it. She had lunch that day, some cabbage soup. Ewwww. I guess I didn’t like it even back then, because what she thought was gas was Me! Contractions had begun and I was about to make big appearance. My Mom new it wasn’t right..everything that she had been told was that this wasn’t going to happen until April. I never have been very patient, guess that has always been the case!! My family converges on Weiss Hospital in Chicago and at 11:30 PM I was born in an emergency C section.

At that time the best NICU as at Lutheran General Hospital so  I was bundled up and sent by ambulance to their unit. My late Grandpa used to always make me laugh when he told me how that night was especially cold and the heat in car went out. The windows fogged up and he drove with his head out the window and I quote, “Froze his ass off!” Ha, loved that story.

So today I made my first call to a local Neurologist to make an appointment to get a head to toe check up…I had to leave a message. So now I’m waiting by  the phone. As usual I won’t be patient. I’m sore today. As with most days, my right side is stiff and tight, sometimes runs right up my head. I really look forward to seeing the doctor.

As adults we all face additional challenges. Like the following from http://www.cerebralpalsysource.com:

Premature aging. The majority of individuals with CP will experience some form of premature aging by the time they reach their 40s because of the extra stress and strain the disease puts upon their bodies. The developmental delays that often accompany CP keep some organ systems from developing to their full capacity and level of performance. As a consequence, organ systems such as the cardiovascular system (the heart, veins, and arteries) and pulmonary system (lungs) have to work harder and they age prematurely.

 

Functional issues at work.  The day-to-day challenges of the workplace are likely to increase as an employed individual with CP reaches middle age.  Some individuals will be able to continue working with accommodations such as an adjusted work schedule, assistive equipment, or frequent rest periods.

 

Depression.  Mental health issues can also be of concern as someone with cerebral palsy grows older.  The rate of depression is three to four times higher in people with disabilities such as cerebral palsy.  It appears to be related not so much to the severity of their disabilities, but to how well they cope with them.  The amount of emotional support someone has, how successful they are at coping with disappointment and stress, and whether or not they have an optimistic outlook about the future all have a significant impact on mental health.

 

Post-impairment syndrome.  This syndrome is marked by a combination of pain, fatigue, and weakness due to muscle abnormalities, bone deformities, overuse syndromes (sometimes also called repetitive motion injuries), and arthritis.   Fatigue is often a challenge, since individuals with CP may use up to three to five times the amount of energy that able-bodied people use when they walk and move about.

 

Osteoarthritis and degenerative arthritis.  Musculoskeletal abnormalities that may not produce discomfort during childhood can cause pain in adulthood.  For example, the abnormal relationships between joint surfaces and excessive joint compression can lead to the early development of painful osteoarthritis and degenerative arthritis.  Individuals with CP also may have limited strength and restricted patterns of movement, which puts them at risk for overuse syndromes and nerve entrapments.

 

Pain. Individuals with CP may have pain that can be acute (usually comes on quickly and lasts a short while) or chronic, and is experienced most commonly in the hips, knees, ankles, and the upper and lower back. Individuals with spastic CP may have an increased number of painful sites and worse pain than those with other types of cerebral palsy. Preventive treatment aimed at correcting skeletal and muscle abnormalities early in life may help to avoid the progressive accumulation of stress and strain that causes pain. Dislocated hips, which are particularly likely to cause pain, can be surgically repaired.

 

Other medical conditions. Adults have higher than normal rates of other medical conditions secondary to their cerebral palsy, such as hypertension, incontinence, bladder dysfunction, and swallowing difficulties. Scoliosis is likely to progress after puberty, when bones have matured into their final shape and size. People with CP also have a higher incidence of bone fractures, occurring most frequently during physical therapy sessions.

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