Posted by: seserdr1975 | October 20, 2013

Twelve things to know

Twelve things to know about cerebral palsy:

1. Cerebral palsy is a movement disorder caused by early injury to the part of the brain responsible for motor control/coordination. The signals sent from the brain to the individual’s muscles are not regulated properly, leading to a lack of control over movement. Over time the lack of muscle control can lead to secondarymusculoskeletal problems.

2. 17 million people worldwideare estimated to have cerebral palsy.

3. Although everyone with cerebral palsy has problems with motor control, they experience the coordination, balance, and/or postural issues in different ways and often face very different challenges.

4. Cerebral palsy is not contagious.

5. Many people with cerebral palsy may have a secondary diagnosis or related complication/s including epilepsy, blindness, hearing loss or deafness, speech/communication issues, sleep issues, learning challenges, intellectual disability, difficulty with bowel and/or bladder control, eating and drinking issues, spinal and hip abnormalities.

6. Current treatments/interventions for CP offer only about a 4-10% gain or improvement. -source, Dr. Iona Novak, CP Alliance Aus

7. Despite being the most common childhood motor disability, cerebral palsy has no dedicated US federal funding, and our private US based CP organizations have annual donations totaling less than 2 million dollars (that is the collective total!).

8. Many people incorrectly assume that cerebral palsy is a pediatric disorder. This is completely incorrect. In fact, there are more adults with CP than children.

9. Cerebral palsy has been a known condition for centuries, yet in the majority of cases specific causation is still unclear. In addition scientists still don’t know why certain conditions lead to the development of cerebral palsy in some  children but not others. For instance, prematurity is one of the most common associations in the development of cerebral palsy but we still don’t know why some premature babies develop CP and others do not.

10. 3 out of 4 people with cerebral palsy (both children and adults) are in pain and some are not able to communicate to describe their pain. -source Dr. Iona Novak, CP Alliance

11. Although CP is considered to be a non-progressive disorder, over time symptoms can worsen.

12. People with cerebral palsy have diverse talents and interests: They are artists, comedians, members of the military, attorneys, teachers, psychologists, leading physicians, musicians, actors, models, athletes, fitness instructors, entrepreneurs, scientists, and the list goes on!

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