So I have been fighting a bug for the last week or so. Its been hard to tell whether the aches and pains are the bug, the CP, or being closer and closer to 40. The chiropractor and exercises seem to be doing the trick. Mel, has pushed me to drink lots of water as well, since the wear and tear needs to be kept hydrated! She has been a huge help!
Morning all. I want to address a topic that came up on Facebook today. Spinal surgery for Scoliosis patients with Cerebral Palsy. First of all, I am not a Dr, nor an expert. This is just my opinion, but I think a very serious topic that affects Adults with CP as well.
Surgery is a very tough choice to make, whether you are a patient or a parent of a patient. This biggest advise I want to relay is do whats best for the long term quality of life for the CP patient. Not every surgery is successful, nor is it needed in all cases. The number one goal for anyone who has CP is to positively impact the day to day quality of life. If you have a spinal curvature over 20% then I encourage a surgical evaluation. Some of the issues of no surgery is that the curvature can worsen at a much higher rate then Idiopathic Scoliosis, which can lead to more serious complications, like respiratory issues, digestive issues and more.
Please read the below text taken from: http://www.orthobullets.com/spine/2057/cerebral-palsy-spine-disorders
Cerebral Palsy Spine Disorders
Tonight I got my pro stretch in the mail! This thing is so cool. I get into a calf stretch and hold it for a minute at a time and do 5 sets 4 times a day. So far I’m sore but I see that it is going to make a big difference. Yesterday I had my arm worked on and now its black and blue!! The battle continues!
Happy weekend everyone. Yesterday I had another session . Today was arm day. I have been sore since the last leg session, so Kip and I agreed that the best course is to alternate arm then leg . The best way to describe my right arm is a stale old rubberband soaked in glue! Ha. The diagnosis is severe scar tissue that has spread like tentacles. So, remember when I mentioned the handlebar deal that Kip used on leg? Well it’s got a baby brother! Grinding and tearing at my arm to try to straighten it out as well as make it more nimble. Happily it felt like a wet noodle after he was done. I’ve been doing regular stretching and it seems to be working.
So..what’s the lesson? I know that there are kids and adults a lot worse off then me. Try using deep tissue massage and stretching by an expert to help loosen those tight muscles. This is a life long fight, and it needs to be fought on many fronts. This is just one.
So today I met with the Chiropractor for the 4th time. He crushed my interior calf muscles again. The upside is that I showed nearly 30% improvement in range of motion. Its a case of two steps forward, one step back. The big key is trying to keep loose in between sessions. I’m looking forward to getting my pro stretch calf deal. I’m looking forward to working through to my arm. Lord knows there is a lot of work to do.
Evening all. Today was rough. I had my third chiropractic visit. I felt like a wet noodle after the session, but by now I am really sore. The key now is to tear down the inner leg muscles. The way my CP presents itself is that my right leg wants to turn in due to atrophy. The PT wants to loosen those muscles up to they can be built up to create more stability.
Imagine this pain, he takes a metal rod about a foot long and is about 3/4 in in diameter and he rolls it against those weak muscles to tear them down. All I can say is OWWWWWW! But as “they” say, no pain, no gain.
A shout out to my love, Melanie who is working her butt off studying her classes!
Hey y’all, I hope everyone is having a great weekend. I had my second therapy session on Thursday. Man was I sore. So my doc got me a pro stretch calf stretch. It looks like it will be a huge help. Should be here on Tuesday!! Anywho, I have cousins in from NM! Check ya later all!
So tomorrow I have my second appointment with the Chiropractor! I’m still a bit stiff but not sore. Whoo hoo!
I still needed to make sure on my off day to do…something. So I spent my lunch spackaling our guest bathroom. The one thing that bugs me is that when I do a lot of repetitive action, like painting or spackaling my left or non CP arm will start to tingle. Hope its just wear and tear.
I’ll grit through it, cuz I love doing the house projects!
Today I met with a chiropractor and I think a may have found a path to healing.
His plan was multilayered. First, beat the heck out of me with deep tissue massage, then gradual stretching, followed by private yoga sessions to develop balance and strengthen my core. Finally to tighten things up , isolated exercises to create “strength balance” on both the left and right side.
I have an incredible sense of relief that finally there is a clear path to begin taking the fight to this CP. The one thing I know for sure over the next few weeks is I’m going to be SORE!
Having CP can be very frustrating. When I was single, it was more frustrating than now. When you’re single, CP or no CP, you need that extra oomph to work a little harder, or exercise a little more, or to loosen those obnoxious stiff muscles. And let’s be honest, cats aren’t the biggest motivators.
But my motivator..my compass is my wife. She has shown me that any disability shouldn’t be ignored. It should be embraced. It is who we are, and the experiences and challenges we face that are shared, will hopefully make someone else’s situation just a bit better.
Tomorrow’s a huge day! Not only am I getting a head to toe CP check up…finally, but Melanie is starting school to be an EEG tech. Good luck to both if us!!